Baltimore, MD (PRWEB)
June 29, 2017
To promote awareness of HHT, Cure HHT has partnered with professional writer and singer, Marsha Hansen to empower others and to shed a light on this rare disease. Proceeds from Marsha’s special recording of “This Little Light of Mine” featuring her brother-in-law, Keith Richards, Blondie Chaplin, and other well-known musicians will go directly to Cure HHT when downloaded on iTunes. http://www.CureHHT.org.
Cure HHT is building awareness, unifying the HHT community, educating the public, and advocating for patients and families all around the world. Hereditary Hemorrhagic Telangiectasia (HHT) is a cruel and unrelenting disease, affecting families for generations. While it can have seemingly mild symptoms like frequent nosebleeds, it can result in disabling and catastrophic events. This hereditary disorder creates abnormalities in blood vessels. They are fragile and thus susceptible to rupture and bleeding, which can result in lung and brain hemorrhage, stroke, and death. HHT, like ALS, is a rare disease, affecting 1 in 5,000 people, but it receives far less research grants and is often misdiagnosed. For more information please visit http://www.CureHHT.org.
Cure HHT has recently shared special tributes, featured stories of hope, and remembered those who have made a difference in the lives of people with HHT. Among other activities to raise awareness, individuals from across the world came together on Friday, June 23rd to honor their loved ones by lighting a candle to “LigHHT Up the World for HHT.”
Singer Marsha Hansen had never heard of HHT until a few years ago after a series of mini-strokes landed her in the hospital. Marsha credits her medical team and their relentless search for a cause of her strokes with her diagnosis of the disease. She then volunteered to help Cure HHT, hoping to raise awareness and…